Clinical Trials

Clinical trials research topics like:
“Is a treatment safe? Does it have fewer side effects? Is it more effective or better in any way than the standard treatments?”
They usually evaluate new drugs, different combinations of existing ones, or new ways of administering standard treatments (e.g., taken as a pill instead of intravenously). Clinical trials allow you to access new therapies or new treatment regimens. At some point along the disease trajectory your doctor may suggest you take part in one, which might cause mixed feelings and ambivalence.

During this stage many questions might arise:

Why should I consider participating in a clinical trial?

What is the process?

Are there any risks or potential benefits?

How can help you deal with ambivalence and take the best decision for you?

What is the experience of participating in a clinical trial?

What should you expect in the future?

How can you deal with the psychological effects of your diagnosis?

Personal Stories

“[My hematologist] told me that a new medication was launched in the United States that hadn’t been available in Europe or Greece, and that he would like me to participate [in the clinical trial]. He gave me the protocol, I read it, I asked around, my son asked around [about it as well] (…) It didn’t have any side effects. Anyways, I was feeling psychologically well. I thought “I’ll be fine with this drug”. It required a few more visits because I had to stay in the hospital for one or two days every time they changed the dose in order to undertake regular blood tests. Because the drug companies who offer this medicine to you want to see the results”. (Johanna)
“When my lab results got worse, she told me about a new chemotherapy. I was the first one who did it in that hospital. I decided to participate because she made me realize that I shouldn’t be afraid. At first, I looked it up, I went to other hematologists and some of them told me: “Don’t do this, since it’s not something tested, don’t do it, go through the old process”. But after discussing it further I was convinced, because I really trust my hematologist, I was convinced and did it. We agreed to do 12 chemotherapies, but after 9, she told me we have the desired result. She told me that I didn’t need to do more therapies and since then I am under active monitoring every three months. (Elisabeth)

Podcasts

Clinical Trials Podcast in English
Clinical Trials Podcast in Greek

Videos

Coming Soon!

Leaflets

Coming Soon!

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