Theodor  ·  Diagnosis
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Theodor

Patient story

Theodor.

77 years old · 9 stages on their path

Fourteen years in. Two treatments, now stable.

Theodor is 77 years old. When he was 63, his hematologist announced to him that he has Chronic Lymphocytic Leukemia (CLL). In the beginning, Theodor was in the “Watch and Wait” phase. At some point, the symptoms of CLL started to appear: he started getting very tired when going about his usual activities and also experienced drenching night sweats. After undertaking certain prognostic tests, his hematologist suggested starting a targeted therapy. Treatment helped Theodor feel better. Theodor continued taking his treatment without having symptoms anymore, while he had regular check-ups. Gradually, his hematologist observed signs that CLL was actively back. He repeated the process: he had prognostic tests, and his hematologist suggested a different type of treatment which was effective. Theodor’s symptoms have subsided and he can continue enjoying caring for his grandchildren.

Theodor’s path so far

9 stages

Stage · Diagnosis

Diagnosis

You may have received a CLL diagnosis quite unexpectedly, following a regular check-up or upon medical examinations for certain symptoms. The diagnosis may have come as a total surprise to you as you may have never felt ill before and had no reason to suspect the disease. Every person has their own story.
In any case, the diagnosis might seem upsetting and scary at first. Take your own time to process the new information and what it means for you. Every reaction is different and that’s totally okay.

    Questions that often come up here
  • What does “Chronic Lymphocytic Leukemia” mean as a term?
  • What is one experiencing when they are diagnosed with it?
  • What should you expect in the future?
  • How can you deal with the psychological effects of your diagnosis?

Personal stories

1 item

  • “At first, when they told me I have leukemia I wasn't very well...It was out of the blue (…) the first thing I remember asking the doctor is whether it is contagious because I have children, and grandchildren (…) I was a mess, I was in my room, I wouldn’t get out, the whole family was by my side. Yet I slowly got over it and I started living life as I normal would”. (Maria)

Podcasts

2 items

  • Diagnosis Podcast in English
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  • Diagnosis Podcast in Greek
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Leaflets

2 items

  • CLL Diagnosis
  • Newly diagnosed with CLL