Lucas  ·  Diagnosis
All journeys
Lucas

Patient story

Lucas.

75 years old · 8 stages on their path

Through one full cycle. Back in remission.

Lucas is 75 years old. He has been living with Chronic Lymphocytic Leukemia (CLL) for five years now. After the diagnosis, the physician recommended to him to undertake prognostic tests, to decide which treatment is the best for him. They chose a treatment for a period of one year, and Lucas achieved remission with CLL being inactive. However, after 3 years, Lucas observed swollen lymph nodes in his neck area. His hematologist detected that CLL got worse and explained to Lucas that they had to repeat the prognostic tests. After the results, they agreed regarding the treatment. Lucas started a novel treatment scheme. Thanks to this treatment, Lucas’s symptoms subsided. Nevertheless, Lucas continues with regular appointments and medical exams to ensure that remission continues. He has learned to live with CLL and he does not feel so threatened by it.

Lucas’s path so far

8 stages

Stage · Diagnosis

Diagnosis

You may have received a CLL diagnosis quite unexpectedly, following a regular check-up or upon medical examinations for certain symptoms. The diagnosis may have come as a total surprise to you as you may have never felt ill before and had no reason to suspect the disease. Every person has their own story.
In any case, the diagnosis might seem upsetting and scary at first. Take your own time to process the new information and what it means for you. Every reaction is different and that’s totally okay.

    Questions that often come up here
  • What does “Chronic Lymphocytic Leukemia” mean as a term?
  • What is one experiencing when they are diagnosed with it?
  • What should you expect in the future?
  • How can you deal with the psychological effects of your diagnosis?

Personal stories

1 item

  • “At first, when they told me I have leukemia I wasn't very well...It was out of the blue (…) the first thing I remember asking the doctor is whether it is contagious because I have children, and grandchildren (…) I was a mess, I was in my room, I wouldn’t get out, the whole family was by my side. Yet I slowly got over it and I started living life as I normal would”. (Maria)

Podcasts

2 items

  • Diagnosis Podcast in English
    0:00
  • Diagnosis Podcast in Greek
    0:00

Leaflets

2 items

  • CLL Diagnosis
  • Newly diagnosed with CLL