Lucas  ·  Relapse
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Lucas

Patient story

Lucas.

75 years old · 8 stages on their path

Through one full cycle. Back in remission.

Lucas is 75 years old. He has been living with Chronic Lymphocytic Leukemia (CLL) for five years now. After the diagnosis, the physician recommended to him to undertake prognostic tests, to decide which treatment is the best for him. They chose a treatment for a period of one year, and Lucas achieved remission with CLL being inactive. However, after 3 years, Lucas observed swollen lymph nodes in his neck area. His hematologist detected that CLL got worse and explained to Lucas that they had to repeat the prognostic tests. After the results, they agreed regarding the treatment. Lucas started a novel treatment scheme. Thanks to this treatment, Lucas’s symptoms subsided. Nevertheless, Lucas continues with regular appointments and medical exams to ensure that remission continues. He has learned to live with CLL and he does not feel so threatened by it.

Lucas’s path so far

8 stages

Stage · Relapse

Relapse

CLL is a chronic type of cancer meaning that it progresses slowly over a long period of time. CLL is also non curable, meaning that it is something you will learn to live with. At some point during the CLL journey signs of CLL progression might appear. Therefore, you may start treatment which can lead to remission. In some cases, signs of CLL progression reappear after a period of time. This is known as relapse. Understandably, this can be quite frustrating and overwhelming. However, an alteration of treatment or a new line of treatment might be what is needed to get on top of CLL once again.

    Questions that often come up here
  • What are the signs of a relapse?
  • What are the next steps?
  • What might be going through someone’s mind during a relapse?
  • How can I better support myself during such a phase?

Leaflets

3 items

  • Coping with challenging emotions
  • Adaptive coping
  • Peer support groups