Theodor  ·  Watch & Wait
All journeys
Theodor

Patient story

Theodor.

77 years old · 9 stages on their path

Fourteen years in. Two treatments, now stable.

Theodor is 77 years old. When he was 63, his hematologist announced to him that he has Chronic Lymphocytic Leukemia (CLL). In the beginning, Theodor was in the “Watch and Wait” phase. At some point, the symptoms of CLL started to appear: he started getting very tired when going about his usual activities and also experienced drenching night sweats. After undertaking certain prognostic tests, his hematologist suggested starting a targeted therapy. Treatment helped Theodor feel better. Theodor continued taking his treatment without having symptoms anymore, while he had regular check-ups. Gradually, his hematologist observed signs that CLL was actively back. He repeated the process: he had prognostic tests, and his hematologist suggested a different type of treatment which was effective. Theodor’s symptoms have subsided and he can continue enjoying caring for his grandchildren.

Theodor’s path so far

9 stages

Stage · Watch & Wait

Watch & Wait

Many people diagnosed with CLL do not need treatment right away. Instead, your physician will recommend regular check-ups and lab tests — a phase called active monitoring, or “Watch and Wait.” It can feel strange to live with a chronic condition without treating it. That feeling is shared by almost everyone in this stage.

    Questions that often come up here
  • Why is treatment not started immediately?
  • How often will I be monitored?
  • What symptoms should prompt me to call my physician?
  • How do I manage the anxiety of waiting?

Personal stories

3 items

  • “I am worried about the future, I don’t know what’s coming for me and I don’t know much regarding my own case, what happens next when it will get much worse, what therapy will I get, what treatment. I am not sure whether it is a good or a bad thing that I don’t know, but it stresses me out, for sure it does make me anxious, that I have no knowledge of what’s coming for me.” (Nikole)
  • “There are moments that you are inevitably thinking of [your diagnosis] and you wonder: “I don’t know what’s coming after”. Not knowing is the worst part. Ι say to myself that I am fine now, but what can it [CLL] cause in the future? Because I don’t know exactly what the outcome will be. (Andrew)
  • In the beginning my family was shocked, but they didn’t believe me because I didn’t have something serious and I didn’t need treatment. They were thinking that I might have something serious and I lie to them”. (Mike)

Videos

1 item

Leaflets

3 items

  • Watch & Wait
  • Psychological effects of illness
  • Examination Types