Theodor  ·  Relapse
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Theodor

Patient story

Theodor.

77 years old · 9 stages on their path

Fourteen years in. Two treatments, now stable.

Theodor is 77 years old. When he was 63, his hematologist announced to him that he has Chronic Lymphocytic Leukemia (CLL). In the beginning, Theodor was in the “Watch and Wait” phase. At some point, the symptoms of CLL started to appear: he started getting very tired when going about his usual activities and also experienced drenching night sweats. After undertaking certain prognostic tests, his hematologist suggested starting a targeted therapy. Treatment helped Theodor feel better. Theodor continued taking his treatment without having symptoms anymore, while he had regular check-ups. Gradually, his hematologist observed signs that CLL was actively back. He repeated the process: he had prognostic tests, and his hematologist suggested a different type of treatment which was effective. Theodor’s symptoms have subsided and he can continue enjoying caring for his grandchildren.

Theodor’s path so far

9 stages

Stage · Relapse

Relapse

CLL is a chronic type of cancer meaning that it progresses slowly over a long period of time. CLL is also non curable, meaning that it is something you will learn to live with. At some point during the CLL journey signs of CLL progression might appear. Therefore, you may start treatment which can lead to remission. In some cases, signs of CLL progression reappear after a period of time. This is known as relapse. Understandably, this can be quite frustrating and overwhelming. However, an alteration of treatment or a new line of treatment might be what is needed to get on top of CLL once again.

    Questions that often come up here
  • What are the signs of a relapse?
  • What are the next steps?
  • What might be going through someone’s mind during a relapse?
  • How can I better support myself during such a phase?

Leaflets

3 items

  • Coping with challenging emotions
  • Adaptive coping
  • Peer support groups