Theodor  ·  Remission
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Theodor

Patient story

Theodor.

77 years old · 9 stages on their path

Fourteen years in. Two treatments, now stable.

Theodor is 77 years old. When he was 63, his hematologist announced to him that he has Chronic Lymphocytic Leukemia (CLL). In the beginning, Theodor was in the “Watch and Wait” phase. At some point, the symptoms of CLL started to appear: he started getting very tired when going about his usual activities and also experienced drenching night sweats. After undertaking certain prognostic tests, his hematologist suggested starting a targeted therapy. Treatment helped Theodor feel better. Theodor continued taking his treatment without having symptoms anymore, while he had regular check-ups. Gradually, his hematologist observed signs that CLL was actively back. He repeated the process: he had prognostic tests, and his hematologist suggested a different type of treatment which was effective. Theodor’s symptoms have subsided and he can continue enjoying caring for his grandchildren.

Theodor’s path so far

9 stages

Stage · Remission

Remission

At some point after starting treatment for CLL you may experience a remission. Remission means that no signs of CLL progression can be detected any more, and symptoms that were troubling you may have subsided. In some treatment regimens, treatment is received until relapse. This means that a patient needs to continue the same treatment, despite remission. In other regimens, treatment is received for a specific period of time. Thus, if remission is achieved after the completion of the treatment regimen, no other treatment is needed. In any case, the phase of remission requires “active monitoring” with regular appointments and medical exams in order to ensure that remission remains.
Achieving remission can be a relief and bring positivity. However, being in remission can also entail worries and uncertainty regarding the future.

    Questions that often come up here
  • What do you have to do during this stage?
  • What do people in “remission” experience?
  • What are some of the emotions and thoughts of people being in remission?
  • What can you do to cope better?

Leaflets

2 items

  • Peer support groups
  • Sexual life and relationships